MY WIFE CAROL WAS DIAGNOSED WITH MND IN 2009 AFTER SHOWING SYMPTOMS FOR A YEAR OR SO PREVIOUSLY. I SHOULD HAVE STARTED A BLOG BACK THEN TO RECORD WHAT HAPPENED - BUT I WASN'T READY TO. I'M NOW TRYING TO MAKE SENSE OF THE LAST 3 YEARS AND WRITE DOWN WHERE WE ALL GO FROM HERE. I HOPE THIS IS USEFUL FOR SOMEONE OUT THERE - IF NOTHING ELSE IT WILL HELP ME TO DEAL WITH THE LIFE WE NOW LIVE.....
Sun Studio's Memphis 2005
Wednesday, 29 August 2012
Meanwhile......Back To Reality..........
I walked out of HMV in the Westfield shopping centre last Thursday morning and stood looking around for Carol.
I was absolutely convinced Carol was there and I couldn't work out where she had gone or what I was doing walking around Westfield on my own.
It was a good 30 seconds before I came to my senses and remembered.
It was the single strangest thing that's happened to me (Memphis aside) in a very long time.
I just stood and looked around, as I'm sure you've all done on many occasions, trying to find Carol's face in the crowd - wondering how we'd got separated and which direction she might have gone in......and then......
It's like one of those movie scenes where the camera goes in close on the person's eye and everything speeds up like it's going through a tunnel......a flashback or a memory......it was very strange.
I'm sure those psychologist types could tell me it means something but let's not go there.
I'd taken Bec and Jaz to London to see a couple of shows. We've not done much together lately and I thought it would be nice. The girls went to "Wicked" and "Wizard of Oz" on Wednesday and we all saw "Jersey Boys" on Thursday - after a day of me following them around the shops!!
That's why I was in Westfield - it was the first shopping stop of the day and I'd let the girls wander off on their own for a while.
That trip was one of the ways I've kept busy since coming back from the States - keeping busy - bet that shocks you doesn't it.
http://www.facebook.com/breathehardrock
Kyle and the band were in the Southern regional final of the unsigned competition in Bristol - they came 5th with only the top 4 going through......losing by just 1 point as well......so have missed out on the big London final.
They performed brilliantly on the night and you can't do anything about who the judges pick - we were all biased so it's no surprise for us to say they were the best band on the day - but that's just how it goes.
I pictured Carol very clearly front and centre wearing a "Breathe" t-shirt - stood at the barrier screaming her head off. How she'd have loved to have seen them play - their biggest fan (and their loudest no doubt!!)
Breathe also did a great gig in Newquay last week - the place was rocking believe me - and Kyle did another brilliant acoustic set with Dani in town.
It makes me very proud to sit there and watch Kyle on stage - he has such a massive talent and just loves playing and singing so much - and you can't help but think that all the while Carol's smile......it's beaming.
The rose we planted in the front garden has bloomed already. It's one of those "Loving Memory" roses, like we planted on Annie's grave. I managed to get a photo before the weather blew away all the petals - it was a beautiful red - Carol would approve.
The plant that Sue bought has also been blown over in the weather - pot and all - twice!! We need to find a new pot.
I can confirm that we've finished at work now - yes it's all finally over - my next task is to find something new to do. I just wish I had even the faintest idea what that might be!!
We're travelling up to Manchester this weekend for a wedding. Theresa and Colin's daughter Laura is marrying Mark and we're looking forward to seeing them and being part of their celebrations. It will be a happy day and I know Carol will be there.
We'll also have the chance to catch up with everyone - it's been a while.
So where are we? To be honest I'm not really sure. By keeping myself busy I've been able to avoid those quiet moments, but they do creep up on you when you're least expecting it. I still feel numb most of the time, spend a lot of time lost in my own thoughts and overwhelmingly just feel so very, very sad.
I miss Carol, I miss my wife, I miss our life.
Sometimes I don't feel I'm helping the kids enough to deal with losing their Mum, but we're all just doing the best we can. They make me so very proud everyday, just seeing how they go about their lives. At times they even seem to be stronger than me - but there's also an unspoken collective strength between us all - that's Carol driving us on.
I'm writing once again on another 29th - they just keep coming around don't they. This one marks 8 months......8 months......nothing more to say.
And in 2 days time it's our wedding anniversary - 31st August 2012 is our 22nd anniversary......it's another one of those hard days we'll need to get through.
Saturday, 25 August 2012
Walking In Memphis - Elvis Week 2012
There's so much to write about the trip to Memphis but I'd probably bore you a lot more than I usually do - so let's just do a quick overview and mention some of the most surreal experiences (and there were lots of those!)
Looking back to when I booked the trip I was thinking about doing this for Carol - as it was something we were definitely going to do in our future. It was the 35th anniversary this year, so a big event in the Elvis calendar anyway - and it also marked 5 years since my failed attempt to get Carol over to Elvis Week for the 30th way back in 2007.
I was nervous about the trip because I was unsure about how I'd deal with the emotions of the event, my recollections of being in Memphis with Carol in 2005 and just the general feeling of being "there" again - in a place that meant so much to Carol through her love of Elvis.
Tom came on the trip with me - for moral support but also as a fellow Elvis / music fan I thought he'd appreciate and enjoy the experience (and I was right about that!)
We spent the first couple of days in Tupelo - Elvis' birthplace - and this is a key year for them. A lot of work has been done at the birthplace and we were present at the ceremony to open the new visitors centre, as well as later that evening as they unveiled a new statue commemorating Elvis' Homecoming Concerts in 1955/6. There were numerous speeches by the Mayor and other local dignitaries, and our group were mentioned on each occasion (Arena Travel have been doing Elvis trips since 1972 so are well known over there). Being escorted around town by police outriders and cars was one of those things that couldn't help but make you smile.
The birthplace is very well done and we had plenty of time to wander around - including our walk back to Johnnie's Drive-In for a drink that turned into burgers and desserts as well (85 cents for an ice cream cone!!).
Surreal in Tupelo - walking down Main Street (it's just 10 minutes they said!!) back to town......seeing Marty Stuart live on stage for free during the evening event......walking into Tupelo Hardware (where Gladys bought Elvis his first guitar) and seeing it's still a living breathing hardware store......then sitting on a coach outside Tupelo Hardware watching Blue Hawaii on DVD with Elvis singing "Can't Help Falling In Love With You"......definite shake your head and smile moments.
Then onto Memphis for the big week - Doubletree on Union Avenue was our base so we were right in Midtown, with a Denny's right across the road for breakfast.....pancakes.....some of the highlights, in no particular order, went like this.....
There was a very enjoyable tour of Memphis, taking in all the Elvis sights and including the Sun Studio tour, then the rest of the week was free to plan for ourselves.
It was very strange standing in that studio again - where Carol had posed with that microphone. Even though I was surrounded by lots of other people, for a few seconds I was completely alone - it was one of those moments that can't be explained without sounding like I've lost the plot (and there were lots of those on this trip).
We went on a couple of the planned events - the Sunday morning gospel show was good and the Elvis Insiders conference was interesting. I enjoyed listening to most of the guests - DJ Fontana, June Juanico, Wanda Jackson and a great section from Jerry Schilling and Bud Krogh, recalling the infamous Elvis / Nixon meeting in 1970 - a very funny story really well told.
We queued up for autographs after this, I'd purposely taken Jerry's book ("Me And A Guy Named Elvis") over there hoping to get it signed.
Carol was always wary about Elvis books but this one she had loved reading - it turned out to be the last book Carol ever read and I was able to chat briefly with Jerry about that. He was clearly touched by what I'd said and signed the book for me "In memory of Carol with love, sincerely Jerry Schilling". I've got to be honest that was a lump in the throat moment that I wasn't expecting.
I think everyone needs to take what they want from the whole "Graceland" journey and, in spite of the circus across the road, the mansion tour is a genuine individual "experience". This was the part I was most nervous about - Carol walking around there in tears is as vivid a memory for me today as on the actual day we did it back in October 2005.
Now anyone will tell you I'm not one for all this "spirit" talk - but during the 3 hours we spent up at the house I felt Carol so strongly that there's no way I could ever explain to anyone what was actually happening.
From the minute we walked through the front door Carol was right there with me. I don't want to analyse it because it was a wonderful "experience" for me - from being terrified that I'd never make it round I actually spent the entire visit with a very contented smile on my face. Even the sight of the black leather suit from '68 (Carol's favourite!) couldn't dampen my mood (well, not too much).
By the time we reached the graveside I had such a strong sense of Carol being around that I just sat there......both aware of and oblivious to everything going on around me.
It was so peaceful, so real, that I really can't explain it - but I stayed there for a long time.
The candlelight vigil on 15th August is something else that will stay with me. Elvis Presley Boulevard closed to traffic, fans camped out for the night, shrines set up all along the road with pictures, candles and toys laid out on the ground. We joined the queue at 8.15pm and, 3 burned down candles later, reached the graveside at 1.40am.
You may ask, why do people do that? Well before this trip I couldn't have told you - but I understand it now. Yes, I was there doing something that Carol unfortunately never got the chance to do - but I needed to do it too - you see it was for Carol but it also became a very personal thing for me - and I'm really glad I did it.
We'd not expected a relaxing holiday and around all of this we'd also been back to Sun Studio, visited the STAX museum (60's soul music - fantastic), took a trip down the Mississippi on a riverboat, rode the Main Street Trolley, watched a Memphis Redbirds baseball game and eaten some excellent food - much too much of it of course. Tom had even jammed with a local kid on guitar in the Gibson shop!
But the other real highlight of the trip was our visit to the Civil Rights Museum - at the Lorraine Motel. I really do struggle for the words here - this is the motel where Martin Luther King JR was assassinated on April 4th 1968. Just standing there was incredible - and looking from the window behind the balcony, up to the building where the shot was fired from - I was speechless.
Standing in a place where such a huge historical event occurred - there's something in the air at those places - the only thing I could compare it to was how I felt when I stood at Ground Zero - it's something that defies words.
The museum is so important in the history of America, and the wider world. The events in that history are at times quite unbelievable in the modern day - but they did actually happen, and in times not that long ago. We spent 4 hours looking round and could have easily spent 4 more.
I went back to Graceland on 16th August, not to go in but just to be there. It was the first time on the trip that I'd been alone - Tom stayed back at the hotel pool - and it was the first time really that the enormity of the trip hit me. This place, and the man who made it all possible, was so special to Carol and I always understood that - but I was standing right there......without Carol.
Later that evening we attended the Elvis 35th Anniversary Concert at the Fedex Arena. I was expecting the same show I'd seen before in the UK but they put on something very special indeed. Taking us from the first TV appearances in '56, through the movies and into the '68 Special, Elvis' love of gospel music and onto the Vegas and Hawaii years - it was quite spectacular (not a word I use lightly) and was a perfect way to close the holiday.
Surreal in Memphis - Beale Street on any night......Having breakfast in Denny's with James Burton sat 2 tables away, then later that evening watching him perform at the Fedex......men of all shapes / sizes / ages / colours wearing their hair in 70's Vegas style (dyed black with huge sideburns) and the women who stood to have their photo's taken with any of them......the ETA's (Elvis Tribute Artists), some of the most plastic faces I've ever seen......the stage in the tent at Graceland crossing, all you needed to do was get up and sing an Elvis song and everybody loved you......Kooky Canuck, you just have to eat there......Memphis, so much of it is just derelict......those fans setting up for the all nighter on 15th......I could go on.
And suddenly there it was gone - with so much crammed into just ten days - and despite the great weather we'd only managed one afternoon lazing around the pool.
I'm proud of myself for going, and making that trip for Carol. I got a lot out of it personally - I feel I understand the Elvis "thing" a lot more and there are many experiences I'll carry with me forever.
Carol's right there you know - right there at Graceland.
It's as strong a feeling as I've ever had - and I can at least smile about that.
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